<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-29213581</id><updated>2011-04-21T14:50:55.323-07:00</updated><title type='text'>Info On MS</title><subtitle type='html'></subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>5</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-29213581.post-116590235814048641</id><published>2006-12-11T21:42:00.000-08:00</published><updated>2007-02-20T16:08:22.150-08:00</updated><title type='text'>John Pageler Update</title><content type='html'>John asked that we post this announcement for those who have been trying to reach him.&lt;br /&gt;He hasn't made a recent entry on this site because he's been very ill.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;Because I hadn't seen a new entry on this site for two months and he hadn't responded to my previous calls and e-mails, I called him today (Sunday, 12/10).  I was sorry to hear that he's been ill and has been in and out of the hospital over the past two months.&lt;br /&gt;He's had kidney failure and had to be put into a medically-induced coma until his condition stabilized.  His platelet count had been critically low.  Barbara, had been called to the hospital on two separate occasions because the doctors were afraid that he might not pull through.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;John said that he's had an MS exacerbation (which is no surprise to those of us who know how stress can affect our condition) and his vision is now compromised. He's not been able to read his e-mails.&lt;br /&gt;Although he's been home for a short while, he said he's going back to the "Olde Age Home"--his words and spelling, but I'm pretty sure it's a rehab--this week (Dec. 10).&lt;br /&gt;His voice was weak, but his spirits were good as he described himself as "a tough old bird."&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;John's been concerned about the people who have sent orders for supplements. Barbara, can't fill them right now, understandably so. &lt;br /&gt;&lt;br /&gt;&lt;br /&gt;He'll be at the Bay Pines Medical Center in St. Petersburg, FL.&lt;br /&gt;Perhaps cards and letters of support will let him know how important he is to us!&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;Ellen and Steve&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/29213581-116590235814048641?l=infoonms.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/116590235814048641/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=29213581&amp;postID=116590235814048641' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/116590235814048641'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/116590235814048641'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/2006/12/john-pageler-update.html' title='John Pageler Update'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-29213581.post-115066434473261610</id><published>2006-06-18T13:59:00.000-07:00</published><updated>2006-06-18T13:59:05.826-07:00</updated><title type='text'>Info On MS</title><content type='html'>&lt;a href="http://infoonms.blogspot.com/"&gt;Info On MS&lt;/a&gt;&lt;br /&gt;             We have tried to get more feedback from other MS patients by opening a BLOG page where everyone has the opportunity to voice anything pertaining to the broad subject.  &lt;a href="http://I"&gt;I&lt;/a&gt; will try and open some of the subjects that should be of interest to people afflicted with this unfathomable disease.  Hopefully it will stimulate each MS’er who reads it to express his or her thoughts, ideas and fears on some if not all of the broad categories I introduce in this letter.  And who knows, we all just might learn some new and better ways of living with this crazy disease.&lt;br /&gt;&lt;br /&gt;            The emotional turmoil unleashed when each of us is told that we have MS as a new life’s companion for the rest of our days.  My God, what an awful blow!  And since most MS’ers are diagnosed between the ages of 20 and 40 years of age the diagnosis always seems to come at an inopportune time.  (Come to think of it when would there be an opportune time?) &lt;br /&gt;            For males 20 to 40 is the time we are supposed to establish ourselves as the economic powerhouse for our family.  Suddenly we begin to have unexplained physical problems that interfere with our business or work schedule.  Even before we are diagnosed the physical problems begin to impact our ability to work.  However, being young and male like I was, you are also probably too macho and stubborn to seek and/or to accept help. &lt;br /&gt;            On the female side of the coin we have a 20 to 40 year old woman in her prime child bearing years, probably just learning that hallowed life-role of wife and mother.  Still learning to cope with the required female roles of efficiently running a household, mothering and nurturing a child while at the same time struggling to maintain the physical and intellectual desirability that brought her to this point in life.  She may avoid seeking or accepting the necessary help for fear of making herself appear weak and unfit to be in that most desirable position of wife and mother.&lt;br /&gt;            Introduce a diagnosis of Multiple Sclerosis and we have either a male or female version of life failure staring us right in the face.  What do we do?  At the time most of us are diagnosed we know little or nothing about the disease except that there are always people walking, riding bicycles, or doing something else to raise money for MS research.  But what MS is and what it actually does except in general terms are unknowns.  We’ve all seen a person struggling in a wheelchair or one who talks garbled or who can’t see or hear and we’ve been told, “She has MS”.&lt;br /&gt;How did you as a newly diagnosed MS’er get on top of it and learn to cope?  Or are you still in denial?   Have you done any research on your own to help you decide yet on how you are going to proceed with your life?  Or are you hanging there just twisting in the wind waiting to be told by the doctors what to do next?    I’m sure that you have been told that in order to survive you must start using one of the CRAB drugs to modify the progression of your MS.  Have you figured out a way to afford one of them or have you decided not to take the recommended drug route?  Did you know there are other, not usually recommended by establishment medicine, but much less expensive however and just as effective non-drug treatment avenues available to you?  Are you aware that untreated, just left alone, Relapsing/Remitting MS is likely to reverse itself time and time again if you have a good mental attitude?&lt;br /&gt;Multiple Sclerosis does not need to end your good productive life and leave you with a mentally, emotionally or physically crippled life.  Did you know that a substantial number of people with MS still both work and walk twenty-five after their initial diagnosis by doing nothing more than adhering to a special diet, exercise and mental health program?&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/29213581-115066434473261610?l=infoonms.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/115066434473261610/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=29213581&amp;postID=115066434473261610' title='4 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/115066434473261610'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/115066434473261610'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/2006/06/info-on-ms.html' title='Info On MS'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>4</thr:total></entry><entry><id>tag:blogger.com,1999:blog-29213581.post-114962295666970098</id><published>2006-06-06T12:33:00.000-07:00</published><updated>2007-02-16T19:41:47.950-08:00</updated><title type='text'>The blog is now operating</title><content type='html'>Well boys and girls you can now communicate your thoughts and questions about my version of the Swank Lo-fat protocols to me for my answers and clarification on this blogger site.  I will be monitoring the site and will try very hard to answer each communication within twenty-four hours.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/29213581-114962295666970098?l=infoonms.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/114962295666970098/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=29213581&amp;postID=114962295666970098' title='8 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114962295666970098'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114962295666970098'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/2006/06/blog-is-now-operating.html' title='The blog is now operating'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>8</thr:total></entry><entry><id>tag:blogger.com,1999:blog-29213581.post-114953382235789871</id><published>2006-06-05T11:54:00.000-07:00</published><updated>2006-06-05T11:57:02.376-07:00</updated><title type='text'>MS Newsletter # 150 – December, 2005</title><content type='html'>Merry Christmas and Happy New Year to one and all,&lt;br /&gt;           &lt;br /&gt;            Well, my suggestion that we end the regular monthly MS Newsletter was greeted by deafening indifference.  Only one person bothered to call and another sent an e-mail saying that they would miss the newsletter each month.  So this is the last regular monthly newsletter.  150 newsletters works out to 12 and one half years and that is long enough to hear one man’s opinion over and over again.&lt;br /&gt;            If anything comes up on the MS front that is newsworthy I’ll certainly put out a special edition of the newsletter.  For the foreseeable future we will leave the web site at bizland.com and we will continue filling orders for those of you who wish to order supplements from us.  The new reality of fewer people taking advantage of our discounted supplement prices means that I can reduce my inventories considerably.  Since I started doing these twelve and a half years ago I’ve had to keep three to five thousand dollars tied up in inventory all the time, but with the smaller volume of orders I can get along with five 0r six hundred dollars in inventory.  That frees up some cash for investment in things that bring in some interest income.&lt;br /&gt;            We were also being inundated with every spam message in the world so we changed our e-mail address from tampabay.rr.com to Verizon.net.  You can use it direct or go through the contact page on our web site to contact me.  The old roadrunner e-mail address no longer works.  Just substitute Verizon.net at the end after JohnPmsinfo@.&lt;br /&gt;            One of our long time newsletter readers and supplement users would like to kind of take over for me in the information business.  He is Peter Breijo from Tampa and he has been using one of the MS drugs and the diet for a couple years and is anxious to share his experience with other MS’ers.  Peter is available to answer questions in English or Spanish by mail at 7210 North Habana Ave in Tampa, Fla 33614 and by telephone at (813) 933-4173. &lt;br /&gt;            Let me outline one last time what I believe every MS patient needs to do in order to get this disease under control and live a life that approaches ‘normal’.&lt;br /&gt;            First you have to want, no need to live without being a cripple badly enough that you are truly willing to change your way of life and never look back.  Don’t be glib about it!  I’m talking about a real, lifetime commitment to living differently than you ever have before.  Dedicated to healthy eating 24/7.  That takes a lot of guts and a lot of commitment and a lot of ignoring the rest of the World around you.  In other words, just plain old orneriness and stubbornness.&lt;br /&gt;            You have to be strong enough mentally to put some foods out of your mind as if they simply did not exist.  Don’t look for a substitute for them; they simply do not exist in an MS’ers world.  And never believe a food manufacture’s claims about Lo or no fat.  The Western taste has been bastardized to enjoy salty fat and food manufactures are going to cater to that taste # 1 because that is what sells.  If they have to lie a little on the label, so what, fines are only a few hundred dollars and profits are potentially in the millions of dollars.&lt;br /&gt;            So we never acknowledge the existence of cheese, bacon, sausage, lunch meat or cold cuts, canned meat, any milk products except 100% skim milk, deserts except fresh fruit and snack food except carrot and celery sticks or that there is any Lo-fat substitute for any of them.  Those things simply do not exist and therefore they cannot hurt us nor can they serve as a fat trigger for our MS.&lt;br /&gt;            Typically exhaustion is the most prevalent MS symptom.  Even when an MS’er shows no other outward sign of the disease, simply being too pooped to pop all the time can make a persons’ life miserable.  The first thing that you notice when you establish a true Lo-fat diet is more energy and less sluggishness. Digesting a heavy fat laden meal is a lot of work for our digestive systems and part of the result is that exhaustion.  Another way to help beat the exhaustion is to increase our heart rate and oxygen uptake so we burn the fat faster.  That is accomplished very simply as well through a regular daily exercise program.  Not a heavy weight program that tires us out, but a light workout of stretching and calisthenics to get the blood cursing through our veins.  One trick that many ambulatory MS’ers use is to walk away from home for 5 minutes and then turn around and return home in four minutes!  That will get you huffing and puffing and raise your heart rate.&lt;br /&gt;            A power nap in the afternoon never hurts and of course there are some supplements like vitamin B-12, co-Enzyme NADH and/or Prometol that are good side effect free alternatives to the drugs in the speed family that the doctors seem to favor.  And when you do things the natural way you always feel better, are more alive, more clear headed and are mentally less drugged or doped up.&lt;br /&gt;            It is almost laughable when I see one of the VA specialists who pride themselves on caring for veterans with MS.  They always marvel at how cheerful and clearheaded I am for an MS patient.  And how lucky I am to be able to function so well, especially diagnosed with MS for such a long time and not taking any of the MS modifying drugs.  They are so drug oriented they can’t see that it is the very lack of drugs in my system that allows me to be clear-headed. &lt;br /&gt;            As far as the cheerful part is concerned, I always try and keep my MS in perspective.  I came to terms with the fact that I will have MS until the day I die a long time ago.  I know there is no ‘CURE’ for MS.  I know there will not be any ‘CURE’ for MS.  However I also know there is a relatively simple control for MS in the Lo-fat diet, exercise, supplements and stress control.  I remain cheerful because I know my limitations and allow for them and I’m not always searching for a ‘pie-in-the-sky’ cure that isn’t there so I don’t ride that roller coaster of hope and despair.  No ecstatic highs of hope or despair of lows when those hopes die.&lt;br /&gt;            I can hear some of you saying, “What does he mean there won’t be any cure for MS?  There is all kinds of research going on all the time.”  It is true that there is research going on all the time, but not for a cure.  Research to treat symptoms and exacerbations; I don’t think anyone is looking for the base cause of the disease any more.  Without knowing the cause nobody is going to find a cure.  MS is too much of a cash cow to be cured.  Look at the tizzy the medical community was thrown into when polio was cured!  A Multiple Sclerosis cure could be an even worse financial disaster for the medical/drug community. &lt;br /&gt;New and more expensive drugs will be developed, but no ‘CURE’ will be found! The drugs will be proved in ‘studies’ to be helpful, approved by the FDA and every Neurologist will try and get every MS patient to add that new drug to the already overwhelming array of prescriptions that their patients already use.  And they will expect them to be a little fuzzy headed and down in the dumps from all the medication.  The worst part of the whole thing is that for the most part the darn drugs are not all that effective.  Oh, they may slow down a couple exacerbations but at what cost in side effects?  No thanks; I’d just as soon do the Swank Diet.&lt;br /&gt;I’ll continue to do my thing and I know each of you must do what you think is the best for you.  Those few of you who have the courage and tenacity to follow the Swank protocols first in conjunction with a standard treatment and then as you find out how successful the diet is and how nice that normal Swank remission is and that you can drop the standard treatment and go just with the diet and supplements alone and remain in remission for what stretches from months into years, you may remember me with a little fondness. &lt;br /&gt;For those of you who don’t have enough will power to follow the diet 100% and therefore never reach that normal Swank remission I know you will always remember me as that crackpot that tried to get you to stop taking your MS medicine.  That isn’t exactly true; I just tried to show you a better, healthier and less expensive way to control your disease.  But only if you had the personal inner strength to accomplish what needed to be done. &lt;br /&gt;I’ve always warned everyone right from the get-go, the Swank Lo-fat Diet is not an easy program to follow.  It takes a great deal of will power and even more won’t power.  A person must dedicate himself or herself to a lifestyle change at least as drastic as the person who decides to go for an Olympic medal.&lt;br /&gt;I can’t tell you how many times I’ve heard people say, “I’ve been on the Swank program for over a year now but I’m still getting worse.  How long before it takes effect?”  A little further into the conversation it comes out that the person is not 100% on the diet more like 90%.  And they lamely say something like, “Well gee I have to have some fun food!”  No you don’t.  You are not suffering from a deficiency of pizza or French fries.  I promise you will not die without them.  The last pizza I had was in 1967 the week before Dr Swank diagnosed me with Multiple Sclerosis and I haven’t suffered a minute for lack of pizza.&lt;br /&gt;The whole Swank diet can be summed up in the simple slang phrase, “Either you is or you ain’t.  There’s no Mr. in between!”  As I said if you are not willing to commit 100% then forget it and take your chances with the drugs.&lt;br /&gt;&lt;br /&gt;OK, on to other business.  We will continue to have the web site on the bizland.com platform and we will continue to fill orders for those MS’ers who wish to place mail orders with us.  I believe that we are the only single source for some of the specialized supplements such as Prometol, co-enzyme NADH, 2-AEP Ca, Mg &amp; K Membrane Complex, Sphingolin Myelin Basic Protein, L Threonine, Bilberry i Sight and Lutein i Care that are used specifically to help ease some MS symptoms. &lt;br /&gt;We are not set up to accept telephone orders or credit cards for payment.  You send a letter with a SASE for a price list or e-mail and we send the price list back by attachment.  Then you figure out what supplements you want, add up our discounted price, plus the shipping and handling for that total order and mail us a check or money order.  We pack your order send it by insured US postal service priority or airmail if it is overseas.  (Add $50 US for airmail) Many of the supplements are somewhat heat sensitive and are not recommended to be shipped in the hull of a ship for extended periods and thus require airmail shipment. &lt;br /&gt;When you start thinking about how expensive these supplements and the mailing cost are try and keep in mind that on the Swank diet you are not eating out in restaurants more than once a year.  That alone is going to save you thousands of dollars.  And if you do not take one of the so called MS modifying drugs that is another $10,000 a year that you don’t have to pay out.  So in reality the Swank diet more than pays for all the supplements you will ever buy.&lt;br /&gt;And think about how much it is worth to you to continue to walk and work instead of push yourself in a wheelchair and be on welfare.  That is the way many MS patients end up ten to twelve years after they are diagnosed you know.  But those on the Swank protocols average still both walking and working twenty-five years after being diagnosed with Multiple Sclerosis.&lt;br /&gt;So there are a lot more reasons to live a good healthy life following the Swank protocols than not.  But of course there are a lot of good reasons for not smoking and for not drinking as well, but that doesn’t mean that everyone is smart enough or has enough will power to live without those vices either.  So even knowing that grilled cheese sandwiches, French fries, and pizza will put you in a wheelchair eventually some of you will thumb your nose and say it’s my life, leave me alone!  And that is your right and privilege.&lt;br /&gt;I’m still answering the phone and e-mails and filling orders so feel free to contact me.  I’m just removing the monthly writing deadline from my life.&lt;br /&gt;&lt;br /&gt;I guess this means an end to the monthly specials also since we have no way to let you know about them any more.&lt;br /&gt;&lt;br /&gt;So long,&lt;br /&gt;&lt;br /&gt;            John Pageler&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/29213581-114953382235789871?l=infoonms.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/114953382235789871/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=29213581&amp;postID=114953382235789871' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114953382235789871'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114953382235789871'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/2006/06/ms-newsletter-150-december-2005_05.html' title='MS Newsletter # 150 – December, 2005'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-29213581.post-114935338222952097</id><published>2006-06-03T09:47:00.000-07:00</published><updated>2007-02-13T13:30:00.403-08:00</updated><title type='text'>MS’ers Newsletter # 151 – June, 2006</title><content type='html'>Surprise, surprise, hello again,&lt;br /&gt;Hello one and all. I guess you just have to look at me like a bad penny. I just turned up again. We have received a lot of inquiries about the newsletter during these past few months since it has been missing off of the web site so I’ve decided to reactivate it, at least temporarily, on a by-monthly basis.&lt;br /&gt;I had a great many more people inquiring about my health than about the newsletter, so let me get that out of the way first. As many of you who have been following this letter for any length of time know, I have been battling phantom pain in my amputated leg for the past 10-years and for which the doctors at the VA seemed unable to find a solution Friends, ten years of such tremendous pain that I screamed most of the night and thrashed around tearing the bedclothes asunder averaging between 2 and 4 hours sleep a night is not a good way to live.&lt;br /&gt;Worst of all is even though they talk a good game and have signs posted all over the VA Hospital saying no one should live with pain, if the pain is of a kind that none of the VA doctors understand, they just kind of shrug their shoulders and look the other way. For ten years! It was as if they expected the pain to just magically disappear all on its own if they just closed their eyes and hoped.&lt;br /&gt;What seemed like the best possibility of pain relief came from a couple VA surgeons who reasoned that if they re-amputated my leg and re-dressed the nerve endings at the amputation site it might remove the ability of those nerves to produce the phantom pain. The 2004 operation was not successful, the phantom pain was even worse. Frankly thoughts of suicide began to creep into my mind, which you may well have detected in my writing last year. Then I was assigned a new Primary Care Physician this year and on my first visit to him he said, “Let’s get rid of the pain first!” He gave me a lecture on the proper way to use it and a prescription for the correct dose of Morphine and the pain that had plagued me for ten years was gone in 24 hours and has been gone now for over two months.&lt;br /&gt;The only thing that I can figure out is that for some reason the VA does not want their doctors writing prescriptions for Morphine and so for 10 years every VA doctor I came in contact with was afraid to try a meaningful dose to get rid of my pain. Instead we did a totally unnecessary re-amputation, which left me wheelchair bound for life because there is not enough leg stump left for a usable prosthesis. Of course I agreed to the operation knowing the consequences in the hope of being rid of the pain. I felt that the trade of a wheelchair for being pain free would be worth it. But the way it turned out I just feel the VA cheated me.&lt;br /&gt;One of the reasons I decided to start writing a letter again is that we have been contacted by so many new MS’ers who have never heard of Dr. Swank and have been assured by their Neurologist that the only possibility of living anything near a ‘normal’ life is by using one of the CRAB drugs. Not true! There are too many of us who aren’t crippled by MS and don’t use the CRAB drugs not to speak up. MS’ers living very satisfying, productive lives on their feet, working and still walking fifteen or twenty years after diagnosis and controlling MS through diet.&lt;br /&gt;The point here is that many doctors make statements that are not factual for whatever reason. Perhaps honestly pointing out alternatives to patients would require too much time and study on the physician’s part? If nothing else what about the person diagnosed with MS who has no insurance to pay for the CRAB drugs? The car salesman or small business owner sure aren’t in a position to shell out the kind of money it takes to be treated with those expensive drugs. Of course there are State and Federal programs to provide drugs for those who can’t afford them but the patient has to jeopardize his family’s standard of living in order to ‘spend down’ to below the poverty level to qualify for them.&lt;br /&gt;Why not a different approach? The CRAB drugs are all based on putting a damper on the MS patients’ immune systems. Simplified, MS is an autoimmune disease. The body becomes allergic to itself and in an immune response builds T-cells, which bind with the MS patient’s brain and spinal cord myelin cells and damage them. The damage causes interference in the transmission of nerve impulses, which in turn causes muscle movement loss and disability. The hope is that the CRAB drugs will interrupt the immune response stopping the damage to the myelin cells in the brain and spinal cord. They work 20 to 60% of the time.&lt;br /&gt;The Swank approach is also to stop the allergic reaction that causes damage to the MS patient brain and spinal cord myelin. But instead of doing it by ‘dampening’ the patient’s immune system it is done by avoiding the thing that triggers the reaction in the first place. However, that’s a lot easier said than done.&lt;br /&gt;Dr. Swank’s research shows that eating habits and the fat consumption in various population groups correlates with the number of active MS cases in those population groups. In the past fifty years there have been a few thousand MS patients, myself included, who have faithfully followed Dr. Swank’s Protocols and have lived remarkably symptom free as well as MS drug free lives. Dr. Swank’s work and the success of many of his patients such as myself has been well known within the main stream MS medical community for many years. He has simply been ignored as has anyone not promoting CRAB or other drug therapy.&lt;br /&gt;(Kind of like the VA doctors who just hoped my pain would go away because they didn’t understand it and it didn’t conform to what they had been taught about pain management. In the meantime the fact that I was suffering excruciating pain was beside the point.)&lt;br /&gt;I honestly believe that the people at NMSS and the big pharmaceutical companies don’t like to see MS patients suffer, but they believe the only way to stop the suffering is through the use of drugs! And of course, the more profitable the drug is, the better for them. They simply have too many dollars invested in MS to see something as inexpensive and simple as a diet prove successful and be in open competition with the drugs.&lt;br /&gt;Maybe if they just keep denying it and ignoring diet it will all just go away. However, there is no denying the fact that 75% of the MS patients following the Swank protocols are still both walking and working 25-years after they were diagnosed with MS. By the way, Happy Birthday to Dr. Roy L. Swank, MD, PhD on his ninety-seventh! He, for one, isn’t going away quite yet.&lt;br /&gt;When we examine this Swank diet approach a little closer we find what I think are several very good reasons for MS patients to at least try this alternative approach for treating their disease. First of course is the cost. The Swank Lo-Fat Diet doesn’t cost the patient any money. Second is the idea of sticking yourself with needles. Most of the main MS drugs are self-injected. And then there are the drug side effects, flu like symptoms are said to be the least of them. The only known side effect to the Swank Lo-Fat Diet is that almost everyone loses some weight. Over time the gals on this diet go down about two dress sizes or more. There is also a direct symptom impact on the disease itself in MS’ers on the diet. They start overcoming the typical MS fatigue in the first month and with the addition of a few simple over the counter Vitamin and Food Supplement formulas they are usually ‘feeling normal’ instead of fatigued in two or three months.&lt;br /&gt;With all these advantages, why doesn’t everybody jump on the Swank bandwagon and forget the drugs? There are several reasons. The most obvious being that the big guns, i.e. AMA, the pharmaceutical companies and the NMSS for face saving reasons as well as monetary reasons and philosophical ones simply can not afford for Dr. Swank to be right. Too many respected men prominent in the pages of the Medical and Scientific Who’s, Who would have to publicly eat crow after all these years of ignoring Dr. Swank and acting as if he was some kind of a crack pot instead of respecting him as an equal. Consequently the publicity and public relations machine of the traditional MS establishment has deliberately created a misleading picture of the diet alternative in order not to divert attention away from the very profitable drugs being developed to treat MS.&lt;br /&gt;It is very difficult to overcome the mental bias thus created in patients and families by the publicity of the establishment. There is also the fear that many patients have in taking responsibility for themselves. It’s easy to say, ”Yes doctor” and go ahead and do what ever he says and hope your MS becomes controlled. If it doesn’t and the patient ends up crippled anyway, it isn’t their fault. They did everything the doctor suggested. If they go on the Swank protocols and they are one of the 25% who doesn’t make it working and walking for 25-years then they have to take the responsibility. But I was a Swank failure! I only worked and walked for 23-years. Of course during those 23-years I played tennis and swam distances for recreation and had only transient MS symptoms lasting a few seconds to a few minutes. And then I stopped working and walking not because of MS but because I had an AAA operation followed a month later by a leg amputation. Then I had an MS exacerbation due to stress and VA Hospital food.&lt;br /&gt;But the most difficult thing about changing to the Swank protocols is changing a person’s eating habits. People do not like to change their comfort habits and food is one of the biggest comfort habits we have. The people that I have worked with over the past 30+ years who have failed to control their disease have all failed because they were unable to control their food urges. The commitment to the Swank Lo-Fat Diet has got to be total. Being on the diet is just like being pregnant, either you is or you ain’t, there is no such thing as part way!&lt;br /&gt;But for those who do commit themselves and follow through the rewards are remarkable. MS’er after MS’er has reported that his/her amazed Neurologist, while they didn’t want to hear about the diet, did tell their MS patient, “I don’t know what you’re doing, but what ever it is, don’t stop - keep on doing it.”&lt;br /&gt;So many people who contact me are at first skeptical about anyone with MS being helped by a program of diet, exercise, food supplements and stress control. Of course they are skeptical, after all their doctor has never told them that the Swank protocols are effective, he probably doesn’t even know himself if he is younger than 50. The anti diet publicity of the MS establishment has been very thorough even extending to what is taught in most medical schools.&lt;br /&gt;When I first started this letter I featured success letters from people using the Swank Diet every month. A lot of you seemed to enjoy reading about how other MS’ers faired on the diet. It seemed to give you encouragement to stay faithful to it. If those who feel the diet has helped them want to write me about their experience I’d like to include a couple of testimonials in each newsletter.&lt;br /&gt;Here are excerpts from an unsolicited note from a long time member of our group named Myrna in Ankeny, Iowa. Just to show some of you doubters that people really do have positive results from the symptoms of MS with diet.&lt;br /&gt;“I think my first symptoms were when I was 45 &amp; I am 66 now. I immediately started following your suggestions when I was finally diagnosed in 1992 at age 53. It is slow progressive. I am full of ‘your’ vitamins, cod liver oil &amp;amp; energy! I am never tired though the progression of numbness in my legs slowly continues. I limp but continue with exercise at the YMCA: yoga, water aerobics &amp; water walking. Thank you for making a positive influence in my life.&lt;br /&gt;Sure do miss your monthly letters. You definitely were the inspiration for my sticking so closely to the Swank Diet. I find myself straying a bit &amp;amp; therefore I’m not feeling as well as I should – But I’m determined to get back on track.”&lt;br /&gt;Letters like that one tug me back to the keyboard. But Myrna doesn’t really need my reinforcement; she has been on the diet for 14 years and knows how much good it has done for her. Others in her same MS Society chapter have been diagnosed years after her and long since progressed to wheelchairs while she just limps a little. I’d say she is doing very well with her diet vs. the drugs.&lt;br /&gt;Just like my wife Barbara. We celebrated her 76th Birthday last week. Many of you have chided me over the years because I take so many vitamins and food supplements every day, you’d faint if you saw what Barb takes, over 20 capsules 2 times a day. But, at 76 she takes not one prescribed medication except Thyroid and has more energy than most 21-year olds. Since I’m in the wheelchair she does all the yard and garden work. She makes jams and fresh ‘from scratch’ deserts from the fruit of her 27 trees and the berry bushes.&lt;br /&gt;After seeing her hang out 4 loads of wash on the lines and then see her hurrying not to be late for an appointment this morning I asked her again to let me hire someone to do the yard or at least clean the pool but her answer was the same as always. “Why should I pay someone to come here and not do it the way I want it done when I feel perfectly able to do it myself? And what would I do with myself while someone else did the work I enjoy doing?” Pretty darn good for 76.&lt;br /&gt;There’s been a change at Alacer Co. since J. Patrick passed away. The new ownership has discontinued the old Super Gram II Vitamin “C” formula. They say there were too many customer complaints about the tablet being too big to swallow. So they have made it smaller by putting only 500 mg of Vitamin “C” in each tablet. It is the same fully reacted mineral ascorbate that is compatible with Dr. Nieper’s 2-AEP formulas. The big difference is the new Super Gram II is two tablets to a one-gram serving of Vitamin “C”. The new sizes are 90 tablets SRP of $ 19.40 and our discounted price $ 14.55. 180 tablet bottle SRP $ 33.65 our price for MS patients is $ 25.25. Emer’gen C 1,000 mg fizzing drink mixes are the best buy I think as well as being an incredible energy boosting delicious drink.&lt;br /&gt;Until next time, be healthy and keep your MS in control! John Pageler&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/29213581-114935338222952097?l=infoonms.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://infoonms.blogspot.com/feeds/114935338222952097/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=29213581&amp;postID=114935338222952097' title='10 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114935338222952097'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/29213581/posts/default/114935338222952097'/><link rel='alternate' type='text/html' href='http://infoonms.blogspot.com/2006/06/msers-newsletter-151-june-2006.html' title='MS’ers Newsletter # 151 – June, 2006'/><author><name>John Pageler</name><uri>http://www.blogger.com/profile/14359267252061742491</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:total>10</thr:total></entry></feed>
